Jacqui gets First Aid trained

Jacqui  Shields, our Trustee and Project Manager, has taken a First Aid course.  She is now has a certificate to handle first aid in the workplace.   Well done Jacqui.

The U has run its every-day first aid training for the group.  It’s not accredited but it provides really useful information on how to handle the first few minutes of seven common medical emergencies and is based on a programme from the British Red Cross.


MP for Sutton and Cheam visited us today

Paul Scully, MP for Sutton and Cheam, visited the group today.  He spent time talking to our members about fibromyalgia and the problems that sufferes face.    Thank you to Paul for spending the time with us – hopefully  he will link up with Alok Sharma MP (Reading West), who held a debate on fibromyalgia in  Westminster Hall.

We reported on her debate – click on link.

Duty of Candour

Anyone interested in the new ‘Duty of Candour’ can find out more from this link to the Nursing and Midwifery Council.

This is an important development and puts a duty on medical staff  to be open and honest when things go wrong.

Fibromyalgia, a poem by Chris Wild

Thank you Chris for sending us this poem.



A medial condition,

One in twenty-five people suffer from it.

A friend of mine, Jakki, is suffering tension,

With this, and wanted it brought to general attention.

The symptoms are:-

Widespread muscle pain,

And more women are affected than men.

The pain is generally pain in the tissue of the muscle,

Which I imagine would cause a lot of hassle.

Also, headaches, and irritability.

Oh, and memory loss,

Now I remember, is what Jakki told me.

I understand that the pain runs deep.

And fibromyalgia also affects sleep.

I understand that there’s inflammation,

With fibromyalgia,

But I don’t have any more information.

FMA UK and FibroAction now Working Together

FibroAction and Fibromyalgia Association UK (FMA UK) will be working together more closely in the future. The trustees of each charity decided it would be in the best interests of both the charities and the people they serve to combine their expertise, experiences and resources. The trustees are now in talks regarding how to proceed with this process, which may take some time.


Ella Vine, Chief Executive of FibroAction said: ‘This is a very exciting time for the charities and for all of us in the wider fibromyalgia field. This is a very positive step in the right direction. We are all delighted about it. The charities have a national scope, undertake very similar work, serve the same population, have the same group of supporters and the same aims. It will therefore be good to combine our resources to ensure that people affected by fibromyalgia in the UK receive the best possible support and that our voice is stronger and heard by policy makers. We are thrilled about it.”


Pam Stewart, Chair of FMA UK said: “The trustees of FMA UK are delighted for FibroAction to be joining with the trustees of FMA UK to be able to move forward together with their support for people with fibromyalgia. This should allow for an even more proactive role in ensuring the best treatment options for fibromyalgia.”